Children's Brain Tumor Foundation (CBTF)
Information and Support
1460 Broadway, New York, NY, 10036-7329
Distance: 46 Miles
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A national non-profit that works to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education and advocacy to families and survivors.
Help provided includes:
* Information and referral
* Online support community
* Information on research and opportunities to participate in research trials
* Free child-friendly story to explain diagnosis and surgery
* Resource guide book
* Bereavement services
There is no fee for this service.
This provider does not offer this service at other locations.
Other Services or resources
This provider does not offer other services or resources at this location.
Taxonomy Terms Used: Clicking a taxonomy term from the list below launches a new search.
PN-8050.3400Internet Support Groups Definition
Mutual support groups that schedule virtual "meetings" via the Internet. Included are e-mail listserv groups (which distribute posted messages to participants via e-mail), bulletin/message boards (whose postings are restricted to people who register), newsgroups (whose postings are unrestricted and open) and chat groups (which permit real time discussion) that are devoted to providing support for participants around a particular issue. Internet support groups are generally available around the clock; and are convenient for people with limited mobility, serious health issues or transportation problems, who don't have time for face-to-face meetings, or who simply wish to maintain their privacy and remain anonymous. They may be the only option for individuals with rare disorders or other unusual problems who are unlikely to find enough people in their local area to form a support group. Internet support groups may be monitored by professionals, but most are not.
PN-8100.3000Health/Disability Related Support Groups Definition
Mutual support groups whose members are people who have specific disabilities, illnesses or other health conditions, their families and friends. The groups meet in-person, by telephone or via the Internet; and provide an opportunity for participants to share information, resources, practical tips for daily living and encouragement about issues related to the disability or health problem.
TJ-3000.8000Specialized Information and Referral Definition
Programs that maintain information about community resources that are appropriate for a specific target group or human services sector (for example, youth programs or addiction services) and which link individuals who are in need of specialized services with appropriate resources and/or which provide information about community agencies and organizations that offer specialized services.
YB-9000Young Adults Definition
Individuals who are generally between the ages of 18 and 25 depending on the ages that specific programs use for qualification.
YF-3000.1300-120Brain Tumors Definition
A condition in which there is an intercranial mass which may be primary (formed in the brain) or metastatic (cancers elsewhere in the body that spread to the brain). Brain tumors can also be malignant or benign. The cause of brain tumors is largely unknown. They can occur in people of any age. Symptoms depend on the size and location of the tumor. The most common are headaches, seizures, numbness or tingling in the arms and legs, nausea, vomiting, personality changes, difficulty with movement or balance and changes in hearing, speech, or vision.
YF-3000.8090Spinal Cord Injuries Definition
Trauma or damage to the column of nervous tissue that extends from the medulla to the second lumbar vertebra in the spinal canal. All nerves to the trunk and limbs are issued from the spinal cord, and it is the center of reflex action containing the conducting paths to and from the brain.